Alopecia areata is the loss of hair in oval patches that can proceed to loss of all hair (alopecia totalis or universalis). The purpose of the registry is to collect patient information and blood samples from people with alopecia areata.

Condition
Alopecia Areata Alopecia Totalis Alopecia Universalis Autoimmune Hair Loss Alopecia Partialis

Further Study Details: 

Expected Total Enrollment:  2500

Alopecia areata is a fairly common disease in which hair is lost either from part of the scalp, all of the scalp, or the entire body. It is thought to be an autoimmune disease and in some cases the disease is hereditary. The Alopecia Areata Registry will collect information and blood samples from clinically well-characterized patients with these three forms of alopecia areata: alopecia partialis (patchy loss of the scalp hair), alopecia totalis (total loss of all scalp hair), and alopecia universalis (complete loss of all hair everywhere on the body). This will be a collection of patients both in multi-generational families and in sib pairs with controls. Information from these patients will be used to search the human genome for disease-associated loci and/or genes. Researchers interested in doing pathophysiology or treatment studies of this disease will also be able to contact patients having the appropriate form of the disease for the studies in question.

Patients who have been diagnosed with alopecia areata by a dermatologist will be eligible for the registry. Patients will fill out an information form online (alopeciaareataregistry.org). Patients who have a family history or specific types of alopecia will be invited to participate in a more detailed questionnaire and physical exam and have blood samples drawn.

Genders Eligible for Study:  Both

Accepts Healthy Volunteers

Criteria

Inclusion Criteria

• Diagnosed with alopecia areata by a dermatologist
• United States resident

Alopecia Areata Registry Patient Recruitment      713-792-5999    alopeciaregistry@mdanderson.org

California
      University of California, San Francisco, San Francisco,  California,  94143,  United States; Recruiting
Colorado
      UCHSC of Colorado - Health Science Center at Fitzsimons, Aurora,  Colorado,  80010-7163,  United States; Recruiting
Minnesota
      University of Minnesota, Minneapolis,  Minnesota,  55455,  United States; Recruiting
New York
      Columbia University, New York,  New York,  10032,  United States; Recruiting
Texas
      M.D. Anderson Cancer Center, Houston,  Texas,  77030,  United States; Recruiting

Study chairs or principal investigators

Madeleine Duvic, MD,  Principal Investigator,  M.D. Anderson Cancer Center   

Study ID Numbers:  NIAMS-097
Record last reviewed:  April 2005
Last Updated:  April 7, 2005
Record first received:  September 29, 2003
ClinicalTrials.gov Identifier:  NCT00069589
Health Authority: United States: Federal Government
ClinicalTrials.gov processed this record on 2005-04-08