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Study of the Emotional Needs of Caregivers of Stem Cell Transplantation Patients - Article


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Endocrine



Clinical Trial: Study of the Emotional Needs of Caregivers of Stem Cell Transplantation Patients

This study is no longer recruiting patients.

Sponsors and Collaborators: Fred Hutchinson Cancer Research Center
National Cancer Institute (NCI)
Information provided by: National Cancer Institute (NCI)

Purpose

RATIONALE: Understanding the emotional needs of spouses or others who are living with and caring for patients who have undergone stem cell transplantation may help improve the quality of life of both the caregivers and the patients.

PURPOSE: Clinical trial to study the emotional needs of caregivers of patients who have undergone stem cell transplantation.

Condition Treatment or Intervention
Breast Cancer
Endocrine Cancer
female reproductive cancer
hematopoietic and lymphoid cancer
Neuroblastoma
psychosocial effects and treatment
 Procedure: psychosocial assessment/care
 Procedure: supportive care/therapy

MedlinePlus related topics:  Breast Cancer;   Cancer;   Cancer Alternative Therapy;   Endocrine Diseases;   Neuroblastoma;   Reproductive Health
Genetics Home Reference related topics:  breast cancer

Study Type: Interventional
Study Design: Treatment

Official Title: Study of Emotional Needs Among Caregivers of Post-Hematopoietic Stem Cell Transplantation Patients

Further Study Details: 

OBJECTIVES:

  • Assess expression of emotion, as a function of patient presence, among spousal or other cohabiting caregivers (CG) of post-hematopoietic stem cell transplantation patients.
  • Assess desynchrony among subjective (self-report) and expressive indicators of emotion, as a function of patient presence, in these participants.
  • Correlate CG dispositional inhibition and desynchrony with physical and marital satisfaction in these participants.

OUTLINE: Caregivers (CG) complete written questionnaires assessing demographics, positive and negative affect, dispositional inhibition, marital satisfaction, and physical health over 45 minutes to 1 hour on day 1. CG then engage in two oral emotional expression exercises (on the topic of caregiving and the transplant) over 2 hours on day 2. Patients are present for one oral emotional expression exercise.

Participants are followed at 2 weeks and 6 months.

PROJECTED ACCRUAL: A total of 60 patient/spouse couples will be accrued for this study within 18 months.

Eligibility

Ages Eligible for Study:  21 Years and above,  Genders Eligible for Study:  Both

Criteria

DISEASE CHARACTERISTICS:

  • In a marriage OR long-term, committed, heterosexual or homosexual, cohabiting relationship in which one member is post-hematopoietic stem cell transplantation
  • Patients must meet the following criteria:
  • At least 1 year since prior first bone marrow, stem cell, or umbilical cord blood transplantation
  • Allogeneic or autologous
  • Diagnosis of malignancy, myelodysplasia, or non-malignancy
  • No indication of possible or confirmed relapse
  • Spouse/caregiver (CG) must meet the following criteria:
  • Serve as the primary CG to the patient
  • No prior or concurrent neurologic disorder

PATIENT CHARACTERISTICS: Age

  • 21 and over

Performance status

  • Not specified

Life expectancy

  • Not specified

Hematopoietic

  • Not specified

Hepatic

  • Not specified

Renal

  • Not specified

Other

  • No concurrent major psychiatric disorder
  • English-speaking

PRIOR CONCURRENT THERAPY: Biologic therapy

  • See Disease Characteristics

Chemotherapy

  • Not specified

Endocrine therapy

  • Not specified

Radiotherapy

  • Not specified

Surgery

  • Not specified

Location Information


Washington
      Fred Hutchinson Cancer Research Center, Seattle,  Washington,  98109-1024,  United States

Study chairs or principal investigators

Shelby Langer, PhD,  Principal Investigator,  Fred Hutchinson Cancer Research Center   

More Information

Clinical trial summary from the National Cancer Institute's PDQ® database

Study ID Numbers:  CDR0000355106; FHCRC-1639.00
Record last reviewed:  November 2004
Last Updated:  November 4, 2004
Record first received:  May 14, 2004
ClinicalTrials.gov Identifier:  NCT00082654
Health Authority: Unspecified
ClinicalTrials.gov processed this record on 2005-04-08


Source: ClinicalTrials.gov
Cache Date: April 9, 2005


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Page Updated: December 9, 2005
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